Scientific article 26. JAN 2021
Establishing research priorities related to osteoarthritis care via stakeholder input from patients
Authors:
- Rikke Steffensen Puggaard
- Lina Holm Ingelsrud
- Stine Jacobsen
- Jakob Kjellberg
- Stine Jacobsen
- Thomas Bandholm
- Per Hölmich
- Mikael Boesen
- Henning Bliddal
- Søren Thorgaard Skou
- Henrik Morville Schrøder
- Susan Weng Larsen
- Anne Møller
- Connie Ziegler
- Anders Troelsen
- Health Care Health Care
Introduction: Stakeholder involvement in research is emphasised to improve relevance. We aimed to identify, define and prioritise important research topics seen from the point of view of people with osteoarthritis (OA).
Methods: We invited 1,315 members of the user panel of the Danish Rheumatism Association to answer an electronic survey that included; 1) an open-ended question about important research topics (free-text response option), 2) 15 predefined research topics to be rated for importance and 3) predefined topics grouped into four categories in which the most important was prioritised. Free-text responses were analysed using content analysis.
Results: Out of 850 (65%) respondents, 483 had OA (mean ± standard deviation age 60.3 ± 10.2 years, 91% female). From the free-text responses, we identified seven research topics; 1) diagnostics, 2) prevention, 3) side effects, 4) treatment, 5) aetiology, 6) being young with OA and 7) quality of life. For "treatment", we identified seven subtopics. Out of all topics and subtopics, "pain management" was the most frequently highlighted. All predefined topics were rated as "very important" or "somewhat important" by more than 75% of the respondents. The top prioritised topics within each category were 1) improving the diagnosis, 2) individualised treatment, 3) shared decision-making and 4) cross-sector collaboration and collaboration between professionals.
Conclusions: We identified research topics that were important in the eyes of people with OA and found that "pain management" was particularly emphasised.
Methods: We invited 1,315 members of the user panel of the Danish Rheumatism Association to answer an electronic survey that included; 1) an open-ended question about important research topics (free-text response option), 2) 15 predefined research topics to be rated for importance and 3) predefined topics grouped into four categories in which the most important was prioritised. Free-text responses were analysed using content analysis.
Results: Out of 850 (65%) respondents, 483 had OA (mean ± standard deviation age 60.3 ± 10.2 years, 91% female). From the free-text responses, we identified seven research topics; 1) diagnostics, 2) prevention, 3) side effects, 4) treatment, 5) aetiology, 6) being young with OA and 7) quality of life. For "treatment", we identified seven subtopics. Out of all topics and subtopics, "pain management" was the most frequently highlighted. All predefined topics were rated as "very important" or "somewhat important" by more than 75% of the respondents. The top prioritised topics within each category were 1) improving the diagnosis, 2) individualised treatment, 3) shared decision-making and 4) cross-sector collaboration and collaboration between professionals.
Conclusions: We identified research topics that were important in the eyes of people with OA and found that "pain management" was particularly emphasised.
Authors
- Rikke Steffensen PuggaardLina Holm IngelsrudStine JacobsenJakob KjellbergStine JacobsenThomas BandholmPer HölmichMikael BoesenHenning BliddalSøren Thorgaard SkouHenrik Morville SchrøderSusan Weng LarsenAnne MøllerConnie ZieglerAnders Troelsen
About this publication
Published in
Danish Medical Journal